Hi Micael --

Even if it tastes bad, try to swallow something -- some people find the lightly fruit-flavored waters now available are OK -- or try a variety of spring waters to see if one is "doable" -- our ENT says she has folks months out of treatment who cannot swallow anything because they stopped for too long (she 's the one who had radiation herself and knows what it means to struggle with the side effects)

One apparent advantage of the tomo machine -- Barry never lost the sense of taste at the front of his tongue so he could taste certain things throughout -- certain fruits (strawberry, mango), chocolate (but it had to be "real" chocolate), chicken soup etc. -- but all a lot fainter than normal. Today he had some coffee and could taste it and says he can now taste further back on his tongue. However a lot of stuff still has very little taste or a greasy taste. A slo-o-o-w process!

Michael, John and Barry all finished at the same time and have a way to go to work their way back up the curve...

Best,
Gail


CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!