Hi Seth, glad to see you! Full time job indeed and a whole lot of trial and error over the next few weeks. Based on my experience since April with my John, your #1 job will be to be sure Michael does not get dehydrated and is getting any pain meds he needs. This meant,to me, that I had to have a notebook, with entries -sometimes hourly- of what he drank orally, what went thru the peg, and what and when he took any pain meds. or other meds. Over the past few weeks, he has felt so bad that he could not remember what he had done during the day or night, so it's up to you. I logged cc's, calories, anything that went into him. We took his blood pressure 2 or 3 times daily[it got really low for a few weeks] Put your nurse's hat on and get ready for whatever happens next. I can tell you that I have cooked and thrown away lots of meals that John thought he wanted or could eat. The food part is trial and error. The peg tube part is NOt trial and error. Use it for lots of liquids and nutrients. If he is having trouble with it, talk to your Docs and get help here. Hope you have time to stick with us, the caregiver role is a challange and you will get lots of help here. We want both of you well so we can come visit. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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