Sorry to hear this, I can sense your pain and deep frustration I had father who had simple tumor and was ignored for years, he died because of ignorant doctors. I googled days before (searching cure for leukoplakia) about complex case of oral cancer treated succesfully (for time being) with Immiquimod. The patient in this case was too fragile due to advanced age for conventional treatment and doctors went with Immiquimod therapy.

[Topical imiquimod for the palliative treatment of recurrent oral squamous cell carcinoma]

https://pmc.ncbi.nlm.nih.gov/articles/PMC5517834/

Hello CheryId,

Sorry to hear you have had another cancer diagnosis.

I hope your treatment plan is coming together and you are doing well.

I am sure I’ve read on here a few folks with a situation similar to yours, but can’t recall who it was.

Might have to search for “new primary after radiation, chemo and surgery” or something similar.

Best wishes for you and yours!

Hello, Daniel, and welcome to the forum -

Like you, I had palate cancer (mine at age 46, a bit older than you, also of no known origin) that led to a hemi-palatectomy and maxillectomy and an obturator. Yes - the experience of the surgery, that initial obturator and packing, etc. was incredibly difficult and painful! Based on the date of your post, I'm guessing you're now in radiation treatment - hang in there with the mask and all! I had radiation, too (and chemo) to zap the area where my tumor was as well as the nerves leading to the neck. I hope you are tolerating it okay.

Sorry to hear about the beard :-(

If you have any questions about the surgery or radiation (process, side effects, etc.), please feel free to DM me or reply to this message. I'm almost 16 years out from my diagnosis and treatment, and though I can't say I love my obturator, it does allow me to eat, drink, and speak almost as well as before. I'm really glad you found the Forum - it was a lifesaver for me during the first year or two of my treatment and it gave me a sense of connection to people who [/i]got[i] what it's like to go through these sorts of treatments. Hang in there!

Peace-
Chrissy

Hello to everyone on here -

I was a member in 2009, when I was diagnosed and treated for SCC of the palate, and for a few years after. I'm back on and am looking for folks who might have good advice about obturators (are there any good ones?? Mine is just not working out well) and possible reconstructive surgery. This forum was a life-saver for me in those early years, and I'm glad to be back!

Anyone out there?

Hi Bowser,

Welcome to OCF forum. I am so sorry for what you and your husband are going through. I saw a question about handling mucous and this one about general support following treatment. The answers will depend on the diagnosis and treatment. Please advise where the cancer was found? what stage? surgery? If so, scope of surgery? radiation treatment? Chemo?

For me, I had stage 4 cancer on my tongue, they removed half of my tongue, all nodes same side of neck, rebuilt my tongue with flesh from my forearm, got a trach tube for breathing, nasal feeding tube until I healed enough to eat through my mouth, then about 6 weeks after surgery, I got radiation treatment.

I will offer my experience with mucous management. Mucous was an issue mostly during my stay at hospital as I recovered from surgery. Nurses would come suction out the blockage, through the trach hole in my neck, to clear my throat as needed. Sometimes multiple times an hour. By the time I went home, in my second week of recovery, they gave me an at home suction machine that worked fairly well but I was no longer choking on it. AT home, I would suction the back of my throat carefully fairly often. They provided me the small tubes etc to deal with this at home but, again, at home it was not nearly as bad. I taught one of my sons and wife what the nurses did in case I had major blockage like in the hospital.

Hope this helps. Please keep reaching out with questions.

Best,
Nels

What to do, remove all the time when it grows up or wait and see approach?

Does anyone have a stratergy to clear mucus from my husbands throat and moith?

Did you completely removed it?