OP Platinum Member (300+ posts) Joined: Jun 2005 Posts: 349 Likes: 2 | I agree that by next week (week 3) I will most likely be on fluids only and soon after problably be relying on the PEG exclusively.
My family is here, and we went to a rough and tough BBQ last night in the meatpacking district. I haven't had fried pickles since the 80's in Austin, TX, so I HAD to try them. They were not too crispy so I managed ok, just dissappointed I couldn't enjoy them. (all 3 that I had:) The Mac & Cheese went down easier, but again, tasted like eating a styrofoam cup.
My sore throat is severe enough to restrict my diet to softer foods. Nothing like crackers, bagels, etc.
But, I am trying to eat as much as possible since I know I can't afford to lose anymore weight (Ive already lost over 20 pounds).
Eating actually helps the sore throat a little still, but I know it will be the opposite soon.
I get the next chemo (YUK!!!!YUK!!!!YUK!!!!YUK!!!!) the day after Labor Day -- The Doc has offered to hospitalize me for 2 or 3 days if I prefer...I haven't decided yet. OF COURSE, I'd much rather be at 'home' each night, but he makes a good argument that sometimes a different setting can break the cycle of the side effects, plus constant hydration and well regulated anti-emetics make a good argument for it. Does anyone have a comment?
I think I have the gag thing under control with mental imagery and the pain as a distraction back there, but I hear you guys that say it can get much worse...UUUgh! There has to be something that can be done?!?!? Maybe accupuncture..?
I had accupuncture last week (Monday) for nausea, it seemed to help a tiny bit, and I'm going back this week, and then again after chemo. I've heard some people have good success with this.
Sloan has a great Integrative Health Center just up 1st Ave. It's like a 5 star spa inside, and we met last week with their director of nutrition, who is very open minded to complementary medicines.
I still have lung pain, and will followup with the Dr on Monday since I am worried about getting an infection or something during tx.
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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