Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Jon, force feed yourself .I still don't have taste except for the 1st bite, Them it nothing but a burning feeling but I eat anyway or should I say drink because evrything had to be almost liquid. My son got me some muscle milk that he uses as a weight lifer to keep his weight up for the wolrld's strongest man competitions. It will help you put weight on if it is available there. You drink it about an hour before you exercise . I do repetions he showed me 2 times a day and 100 reps each time. I am now up to 171 this morning. The best part is the muscle coming back on my bones. I look human again even without the 50 lbs I am still short of. If i could eat real food , I am sure I could do better.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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