Thanks guys as I am trying to get a list of questions to ask the doctors here, this and any Information and ammo you can give me will be most wonderful, ill answer your questions below best I can, but I have not got the biopsy yet until Saturday, I know it will be bad though. my lymph node is swelling a little bit more daily and the doctor says it will may be go to the right one soon also, that dose not sound good.

EzJim. Go back to the UK where the treatments wil better benefit you and there is much More experience dealing with this than where you are at the present time. I have you in my prayers and thoughts. I am sure you will be hearing from a lot of survivors very soon. Jim

Jon says :- Thanks Jim for your kind words all these survivor stories are heart warming and give me hope to not wait to die with kindness but to stand up and fight to the end, the problem I have is finding the right doctors in the know and I will have to go back to the UK for that even so the Bumrungrad Hospital is world famous and many American s come there for treatment as its not only the best hospital in Thailand it has the best faculties in Asia, and 1/3 of the price less than the western Hospital

davidcpa says.
My main concern and yours to is the recommendation for BOT to cut that part of the tongue out and now your saying the voice box as well. Certainly I'm not a doctor and you haven't been more specific about the actual Dx but that part of the Tx seems so drastic. For example with BOT and 2 nodes positive I was told by 3 different cancer docs that they wanted to do a ND (from radical to partial) and 2 cancer docs said no ND. None of them however ever mention surgery to my tongue. I ended up choosing Moffitt, a CCC, to do my Tx because I viewed them as the most knowledgeable with a team approach and it didn't hurt that they also gave me the best chance of survival and with the least invasive Tx. davidcpa

Jon says :- Yes davecpa after looking at the various forums around the world, it would seem if they gave me any of the paclitaxel, ifosfamide, and cisplatinum drugs which would you recommend, plus chemo and may be radiation, is there different chemo�s and radiation names, what ones did you have Dave, can you let me know what ND stands for, I cant see it in the abbreviations. I would not go for cutting out my tongue and voice box anyway, it just seems to drastic, to give you any quality of life, after the operation.

Eileen says.
How many doctors are on your team? Here at CCC centers we have at least a surgeon, an RO and MO. Surgeons tend to recommend surgery since that is what they do. Do you have an RO? What do they say about radiation and chemo vs surgery? [/i]

Since the surgery they are recommending is SO drastic quality of life wise, does this surgeon think he can really get all of it? Is he recommending radiation afterwards?

I too think you should get a second opinion. How good is the place that is recommending surgery? Is it one of the top centers in Thailand? If not, I'd get to one. Eileen

Jon Says :- Hi Eileen, I have a surgeon RO so far I have to go Saturday to see the radiation lady to see what she is going to suggest, I�m trying to get enough Information so I can give it to her about cisplatinum drugs and if they have found there way here, yet. Would you recommend this drug for my BOT cancer and my swollen lymph node? I�m at the top Hospital in Asia as I said above so if they cant sort it out no one can here but as many have told me, they recommend totally cutting out my tongue, to start with it has put me off . I�m thinking may be they are not up-to-date with the latest treatments for this illness and when they said it may be HPV but was not interested in confirming it this also made me wonder, I don�t know if it is any easier to treat HPV rather than normal cancerous area in the BOT so can any one tell me.

Looking forward to your knowledge and fast experience her guys� thank you may be you are not only educating me but the best hospital in Asia lol