 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jon,
Of course we'll be here, that's what this site is all about.
If you were in the US I would definitely tell you to get another opinion from a Comprehensive Cancer Center (CCC) but over there I doubt that's possible. My main concern and yours to is the recommendation for BOT to cut that part of the tongue out and now your saying the voice box as well. Certainly I'm not a doctor and you haven't been more specific about the actual Dx but that part of the Tx seems so drastic. For example with BOT and 2 nodes positive I was told by 3 different cancer docs that they wanted to do a ND (from radical to partial) and 2 cancer docs said no ND. None of them however ever mention surgery to my tongue. I ended up choosing Moffitt, a CCC, to do my Tx because I viewed them as the most knowledgeable with a team approach and it didn't hurt that they also gave me the best chance of survival and with the least invasive Tx.
I wish I could help more.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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