Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Jon , it is good to see you post again. Your problems with food in pretty common for most of us. It is 2 1/2 years since my neck dissection and loss of a good bit of my tongue on both sides plus all of the pieces taken for biopsies. I still can taste only the frist food that goes into my mouth and after it is all the same and all liguid or very soft. I lost my tatse for food but force feed myself. Just make yourself eat and gain some weight back. After a nice breakfast of poached eggs on b uttered very fresh bread, I stil only weigh 158 and can;t seem to gain any weight. I like you and a lot of us get discouraged but we must continue to fight this OC and do our best.Just keep right on pluging along and one day hopefu;;y, you will get the upper hand.. Good Luck Jon and be brave.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
|