Jon,

First ND = Neck Dissection which can range from Radical where they take all the nodes on one side and muscles, nerves and blood vessels to Partial where they may only take the confirmed nodes.

Re HPV, there have been at least 2 recent studies that have confirmed that HPV+ SCC responds better to existing Tx and therefore has a less chance for recurrence.

Re chemo, I had Cisplatin which is still the most widely used chemo to ASSIST the radiation.

Re radiation, it's the ONLY thing that will kill active SCC cancer cells. They usually recommend adding chemo if there has been nodal involvement and they will usually say that the chemo will add another 20% or so to the kill rate by effectively making the cancer cells more easily killed by the radiation. Usually chemo is never given alone unless they are trying to "clean up" post radiation or you reach a terminal stage.

Re totally cutting out your tongue, I WOULD RUN FAR AWAY FROM THAT HOSPITAL unless your primary BOT is massive.

Why can't you go back to the UK and get free medical care?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.