"Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | Jon, After completing Tx, food tasted real bad to me for the first month, then began selectively and gradually improving.
After about two month the first few bites would taste Ok, then cardboard, and finally the bad taste.
After three month I was doing Ok. I kept my PEG for a couple months or so and used it to keep my weight up.
A couple thing that worked for me was fruit juices. Dark juices like grape, blackberry. They actually have a lot of calories (mainly sugar, but calories never-the-less). I was able to drink these all the way through Tx and until my taste improved.
Following Tx I found I could eat fried eggs and cheesecake. Just keep trying things and retry them again in a week or so. For a while you have to do your best and eat to live, not live to eat.
I am glad to hear you made it through.
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
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