Supporting Member (50+ posts) Joined: Jan 2009 Posts: 71 | Teacher Jon, I�m glad to see you are posting again. I have always looked for your thread because of the additional burden of red tape you have had to go through. It�s also good to hear the lymph node tumor has shrunk in size. Chances are the tongue tumor has also. My doctor told me the lymph node tumors are the more difficult ones to get rid of in base of tongue cancers.
When I started eating it was a struggle to get things down. Not much tasted good. I think you will find that scrambled eggs or mashed potatoes and gravy along with some ground meat are the most recommended. I�m almost a year out (jan 27 �09) and thought my taste was close to normal but found out over the holidays that pumpkin pie does not taste as yummy as it did before. My new favorite holiday pie might now be apple.
You�ve been through a lot. Just hang in there and realize that in two or three months you will be feeling a whole lot better and on your way to recovery. Continue to keep us posted. I�m sure the posts will soon start to be about recovery. Your thread was dormant for about six weeks and I�m sure I�m not the only one that started to worry about you.
57 @ Dx, Stg IV BOT (1.5cm), lymph nodes (lrgst 2.5cm), non-smoker, casual drinker and exercise nut, Cisplatin x 2, Erbetux w/IMRT x 35/70Gy, PEG, Treated in San Antonio @ CTRC 12/16/08-1/27/09. 3/5/09-CT 6/12/09-PET, PEG out 12/1/09-CT 12/6/10-PET 12-8/11-CT 1-4/13-CT (all clean) |