Hi All

Well I came out of Hospital having to stay as I was not eating or drinking owing to a serious loss of appetite.

I have now had my feeding tube taken out as I went against the idea of a Peg fitted I�m glad I did I had lost 25 kilos in weight and now I have gained 10 kilos the doctors say I need another 6 kilos to be at my perfect weight but don�t find it so easy eating by mouth as everything taste of cardboard and parrot droppings.

I find I can drink pomegranate and grape juice ok but milk seems to bring back the flem in my mouth I can eat spag bog the frozen packet type but mostly I can taste so much salt in it topped with a slice of ham and poached eggs and boiled veg potatoes carrots onions mixed with butter and Honey this is it so far any one else know of any good recipes.

I have to go for a MRI scan as my Lymph nodes seems to have shrunk down to 1 cm and they are hoping more by 13 march from 6 cm so they say the primary base of neck should be same so good for me but warned me if they don�t like what they see its the surgeons knife cut out lymph nodes and may be some base of tongue but he don�t think so with me God how frightening is that to think about.

So that it trying to eat and put on more weight. My strength has come back but last couple of days I feel weak but it�s the boring diet I think.


Thanks Guys

Teacher Jon


"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.