Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Hi Jon, It's hard to talk for someone else but we all seem to. I just got out of the Hospital again from a few days of my mouth wanting to leave my body and go on it's own. Tomorrow I meet with 2 of my Drs about needing surgery to have some dead bone removed from my jaw. THey gave me 2 more scripts while I was in there and they do help some. Methadone and morphine. I am down again to the 171 lb range too. This they don't like either but you can only take so mi=uch pain. I'm glad they have some plans for you now and hopefully, this will improve your life style. I had to have all of my teeth removed and it's no fun losing the ability to eat FOOD> LOL. I never ate in sips before. Have a good day Jon and take care, Your buddy JIM
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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