"Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Jon,
Good to see you have a start date and are finally able to plan out your treatment and recovery. I can tell you that none of us here can give you a day-by-day, blow-by-blow summary of how your symptoms will develop. This is such a personal disease. It�s effects and the effects of the treatment are completely different for every one of us.
I can tell you that the first month was not that bad for me, but others at my CCC started having problems with pain and eating inside of two weeks. I later formed very painful ulcers on my tongue that others never got. I was able to stay with solid foods for about 6 weeks, then had about 3 weeks on the ensure and VHC and now am back to soft foods.
I was relatively pain free until treatment was almost over and then got hit by the tongue ulcers and a very sore throat. You have to prepare for the worst and pray for the best.
I think you are asking all the right questions and I think others will contribute some answers that may give you some guidelines, but we�ll all be partly right and partly wrong.
My prayers are with you as I work in South America and know how tough it can be to be in a very poor and different culture while your ill. I generally try and get the next plane home, but have been stuck in bad places while deathly ill, it�s very scary.
Kelly
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
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