So true Emily. IMO the problem is that they never had cancer so despite their medical training and experience, they simply do not have the broad depth of knowledge about the day to day aftereffects of the TX they administer. We here at OCF do.
Once a doctor does get oral cancer, like poster dribrooks here, he quickly gains a new deeper understanding.
Actually in general, I find people who do not have cancer (or were not caregivers to cancer patients) simply do not know what they are talking about when they give advice to cancer patients.
Like the counselor who told one poster here not to come to the OCF forum for support or help.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13