Patty,

I'm fairly new here and I have just read this thread and am truly just amazed at your wonderful spirit. My mom is dealing w/her fourth time w/this stuff and I thought she was strong. I think you are doing a fantastic job of standing up for yourself and of trying to enjoy life around you. I totally agree that I would want to know exactly what was going on - good or bad and think honesty is the least the docs can give you. I'm also glad to hear that the hospice folks were so positive - good to know they are on your side! Hang in there and keep a stubborn streak in there with all the good you have as it comes in handy sometimes. I will be watching for more posts from you and keeping you in my prayers. Lots of love and hugs to you - feel better - Nancy T