Awe man Patty. This is unbelieveable. You have been thru so much to get this far down the highway of life and thinking no more bends in this highway. I feel so bad for you and what you must be thinking. I am praying that there is something they can do for you to get rid of this diagnosis. I am too into shock to type anything that makes any sense. All I can say for now is, make that list and ask those questions today. Listen for any answer that might give you an idea of something you want them to do. Post when you hear and good luck today,. Your buddy Jim


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here