I remember seeing a thread from Pete about diluting the formula so that the pump could run all night. I started adding 4 oz of water per can today and will adjust up or down from here. My goal is 5 cans per day, plus the Shaklee shake that I have each morning and I have not been getting the formula in the past two days. Of course, it does not help when I am gone for Ebitux for over 4 hours when it should not take that long or that I have to stop at the drug store to buy supplies that the visiting nurse keeps running out of. I had a discussion with the nurse today. She is also suppose to see if someone from Hospice will talk with me because I need some more support and need to know what to expect. Right now I feel like there is plenty that they are not telling me and don't like that part.
So glad that we idtenified the mystery bird!Stay dry over there Jim - 3 or 4 days of this weekness.
Love you Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
