I didn't start having symptoms until well into my 5th week - except pink skin, but as I'm sure you have already found out, anything is possible because we are all affected differently. Towards the end of it all, I couldn't put anything in my mouth, including water because the mucositis was so bad. It felt like a million razor blades were in my mouth - but I kicked up the pain meds and made it through!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****