Hi Geri

I had my radiotherapy treatments in the morning that way usually there was very little waiting, except for every Wednesday which was when I had the chemotherapy first and then followed by the radiotherapy. On those days I usually didn't get to the radiotherapy rooms until late in the afternoon, which made those treatment days very very long and tiring.

Fortunately, where I was treated the chemotherapy nurses always contacted the nurses at the radiotherapy rooms to advise them that I was on my way upstairs so they would put me straight into my treatment and prevent me from having to wait.

Unfortunately it can be a difficult long road and I really do wish that had I of found this site along time before I did and therefore I would have been more prepared with what to expect. It certainly would have made me realise that what I was going through physically and emotionally was not unusal and was part of the course for most people.

Karen



46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery