Kelly

You said:

"I feel bad as I was the one who recommended you give this a shot. I don�t know what to say about that other than I am sorry if I have caused you any undo pain or discomfort."

PLEASE don't feel bad for one moment! Finding OCF and you has been a gift that has given me knowledge, strength and courage I would have never had if not for you and this site. After reading about all your travels and what you have endured I became optomistic about what might be avaliable for me and I choose to follow in your path. Even though some of the best gave you little hope for the future you perservered and found hope and it is paying off. It seems as though, in a way, that what is happening for you is some kind of miracle and it is so encouraging to know that miracles can happen.

I never really understood your condition but it seemed much worse than my own so I felt confident that a cure for me would be quite simple. Unfortunately, so far, things have not worked out as I wished but I have not given up. I feel stronger because I know I at least tried and I have not given up trying just yet. I am lucky things have not gotten a lot worse and it seems I may have a LITTLE time to look at other options and I will. I am confident that there is a better option out there but I just don't know what it is or where to look. At the moment I am waiting for Dr. Heron to see the results in hopes of his having some positive suggestions. I received an email from him yesterday, at midnight, and at that point he had not received anything. I am also trying to find out where there might be a clearing house of positive clinical trials taking place, maybe such info is in a data base, that might pertain specifically to what my problem is.

PLEASE don't feel bad for one moment! The information you and others have given has all been helpful. 3 for 3 is not possible at the moment but 2 for 3 still is and that is real good.