Nocam,
I am deeply sorry for you and the news that you received. It seems like there are a lot of veterans on this site that have some viable suggestions. I really don't know what else to say. I hope that you and your team can come up with a treatment plan that will save your life as you are willing to accept it as a new normal. I wouldn't want to have to make the decisions that you are facing. Just take some comfort in knowing that there are people here who have been there and done that...not a good choice, I know.

I am with you every step of the way, as I'm sure we all are.

Please try to do things that will help you relax and laugh a little as you wait for these plans and decisions to be made.

With great care,
Kerri

37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!