I am back in Georgia now and waiting for Chemo to begin. I guess I will go with Erbitux and hope for the best. Not sure yet how often I will be given this stuff but will report back when I learn more.
As I understand it the unit that was used to give me the radiation is called TRILOGY and does more and better than a Cyberknife unit. I was told this unit as well does not permit seeing what is taking place with the tumor during treatment and a patient must wait 6-8 weeks for a pet scan before knowing more.
Since returning home last Monday I am experiencing a lot of bleeding. During the day it seems mild but at night it gets heavy. I assumed it was because I hack a lot trying to clear my throat but now I am not so sure because I am trying to keep hackingto a minimum. Does anyone else have this kind of problem from radiation? Tonight I am goingto try a humidfier and see if that helps anything for dry mouth is a more serious problem at night.
2010 sore throat Jan 2011 ENT no prob Jun CAT no prob July PET July biop pos July PEG
HPI (1-3) T2N1 squamous cell carcinoma right tongue base treatment chemo/XRT end Oct 2011. Jan 2012 PET neg June PET-18mm mass right tongue base pos to 7.2 SUV no nodes pos July MRI. July bio pos