Im very very sorry to read the radiation did not help eliminate the cancer. This is indeed a very unusual situation. I would suggest to go to one of the countries top cancer centers. This would be the best chance for a successful treatment of this resistant cancer. At a major comprehensive cancer center they will have the countries top doctors who are the most experienced in difficult cases. They will use a team based approach to this. This may be your only option to being cured, please look into other centers if not for treatment then at least for a second opinion. The top 4 centers in the US are MD Anderson, Johns Hopkins, Sloan-Kettering and Moffitt (in no special order). Ive had recurrences myself and know how disheartening this news can be. You seem to be handling this very well and know the importance of selecting the proper treatment facility.
Wishing you all the very best with the difficult decisions you are facing.
Christine SCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive
