Hi Nocam, I'm sorry to hear that your tumour has not responded to the radiation. Please don't discount salvage surgery to treat this. Kris required salvage surgery when his BOT tumour reoccurred 10 months post chemo and rads. The tumour board told us that as chemo and radiation had not worked why would we try it again. Their recommendation was for surgery. This was the only option that offered us a chance of a cure. Would a clinical trial be a curative option?? Please don't waste time . As of now your tumour has not metastasised. Proceed with whatever you do decide ASAP. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
