Nocam

Oh No. A bad scan result is a real life nightmare. As Kelly noted, no tumor shrinkage is highly unusual but the term radiation resistant is exactly the explanation I got from my CC when I asked how in the world could my tumor come back in the same spot within a year. But then, back in July when you started this thread, your doctors thought that surgery was the way to go rather than more radiation and you even had it scheduled. Based on what happened to me, I understand why you wanted to try radiation instead one more time.

I agree with Tammy that now salvage surgery should be considered. Yes there are consequences, but if I had not had the surgery early in 2009, I'd be dead by now. It did the trick on getting rid of that radiation resistant tumor. This most recent cancer is "new" and in a different location than the original tumor.

I'm sorry this has happened to you. Your posts have helped make clear some of the problems with marketing by hospitals as well as the false hopes raised by newspaper stories that everyone can be treated with robotic surgery. I was crushed also when rejected for TORS and had to go the split open the jaw and scalpel it out routine of salvage surgery. I was really hoping for a good PET result for you. I was remiss in not thanking you for your well wishes on my MRI.
So consider the surgery now as that has the potential to cure this.
Hang in there.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13