I would get on a plane and go to md Anderson - or Sloan kettering - your life means everything - money does not. That was first off - now secondly i would get myself to another GP. Seriously this guy is not acting in your best interest. What dr denies a patient a second opinion? No good one that I know of. My dr is normally expected to consult and refer within his hospital and collegues - I live in a suburb of Toronto - When I found out I had tongue cancer (with no precursors for it) he expedited my tests - and didn't say boo (didn't even enquire as to who had given me the pretyped referral letter with his name and address on it!) when I asked him to sign it - he did it - so I could be seen at the top ccc in Canada. This is highly unusual but he was all for it...

Your dr is being totally wrong at best - negligent at worst. The one thing I do stress do whatever you choose - quickly. Also did they determine your cancer HPV + status? Normally chemo and rads are the treatment for HPV+ bot cancer and it responds, but non HPV requires a little more agressive treatment, often surgery first. Locationwise it's usually HPV if it's base of tongue but not always. Definitely push for a second opinion. I was under the impression. That most CCCs In the states will take you without a referral.

You have a right to a second and third opinion if you want one it's your health and your life.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan