Cheryld

Do you have any problem with aspiration or does everything work as it did before you had a partial tongue replacement with a flap? I keep hearing about aspiration being a probable problem and how dangerous it can be. Thanks for the offer about Facebook but that is something I have not anchored into yet.

Charm

You are very knowledgeable about so many details related to cancer and I thank you for explaining some things I know so little about. Are you familiar with the procedure of stretching and rotating the tongue to replace the portion of the tongue that has been removed? I always hear about the flap approach but, as a layman, it seemed stretch and rotate would be much better. Do you have a flap?

Dr Lee�s explanation captured my attention for I had never heard anything about procedures explained before. I can only relate to my own experience and I hoped all the best, very focused, steps were followed for me. It was my understanding that someone was going to show me what was on my Petscan etc. and show me, in general, what was going to be done. I was told nothing, even though I asked at one point. I meet for mask making and when I went in the next time radiation began. About mid-treatment I ask if they could tell what was happening with the tumor and was told nothing was know yet. Near completion of treatment I ask again and was told nothing would be know until a Petscan could be done a few months later after the area had time to do some healing. About 2 months later a Petscan was done and all was negative at that point but things had changed 5 months later.





2010 sore throat
Jan 2011 ENT no prob
Jun CAT no prob
July PET
July biop pos
July PEG

HPI (1-3) T2N1 squamous cell carcinoma right tongue base treatment chemo/XRT end Oct 2011.
Jan 2012 PET neg
June PET-18mm mass right tongue base pos to 7.2 SUV no nodes pos
July MRI.
July bio pos