Nocam, everyone is giving you great advice. My concern is the length of time all this is taking. You had a clear PET in January. 6 months later in June it is back. It is now August. We have been through this surgery you are being offered and I will always be here to help you should this be the route you take. But please, get this sorted soonest. ASAP. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
