Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so sorry to hear of your doctors "suspicions"!!!! You have already been thru so much. Im happy to read you are "all in" and will continue instead of being defeated.
In 2009 after 2 consecutive years of being diagnosed with OC, I heard my doctors tell me something close to what you just got from your docs. Please feel free to PM me anytime if you have any questions you would like to ask me. Dont go too much by my experiences... I had serious complications. Bottom line is I survived and am still around to help you and others facing jaw removal surgery. Its NOT an easy road but it definitely is doable.
Best wishes with everything you are dealing with!!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |