your story sounds like my husband's. your treatment plan sounds the same except his was 35 treatments. just to give you some hope, no one would know he had a diagnosis of cancer a year ago. He coughs a lot but other than that, nothing physically present. It was awful, I'm not going to lie to you. He lost 60 lbs in 2 months because he refused to use a feeding tube and ended up hospitalized due to dehydration. He was so dehydrated, his mind was completely shot and he couldn't do the most simple task. I don't think is normal during treatment. The feeding tube was the worst part of treatment for him. it never fit well but that's probably due to extreme weight loss so quickly.

It wasn't a picnic but they told him that he has a 90% survival rate now. They changed his diagnosis from 4a to a 2 due to the HPV 16.

Take care and keep checking in.

Last edited by ConnieT; 08-27-2019 07:39 PM.

Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free