Thanks Gloria. My RO is “cautious” or responding to my anxiety about the new pains I’m experiencing. I’m getting the feeling that the survivors of this disease live the rest of their lives with anxiety over a cough or any form of oral pain? Do you ever get over that?

Second question for caregivers. What can patients do to reduce the “burden” on caregivers?

This may sound odd, but I have noticed that in many ways, my cancer diagnosis has been more difficult on my wife (and caregiver) than it has been on me. It is not as much the physical burden (I have done reasonably well in that front) it is more the emotional burden - coping with the effects of cancer on our relationship; the unknown prospects for the future; feeling helpless at times in managing the disease, difficulty sleeping - I could go on, but I suspect many of you caregivers can relate.

Any suggestions on how to reduce these burdens on my spouse / caregiver? I’m starting to get a little worried about her.

Last edited by Barry Toronto; 01-26-2020 06:41 AM.

Preliminary diagnosis of SqCC at base of tongue August 2, 2019.
Biopsy surgery on August 15
Confirmed sqcc from biopsy Aug 20 - hpv type 16
33 radiation treatments ended October 25, 2019.
3 (large dose) cisplatin treatments.