Wow, that’s really helpful, thank you. And some excellent advice, I will take it to heart. I’m supposed to get the results of the biopsy on Tuesday so expect that will be the final stage of diagnosis.

I’m having difficulty maintaining weight now, so I am worried it will get worse during treatment. With throat, tongue and jaw pain, eating is uncomfortable. I have probably lost 15 pounds in the last two weeks and have been ‘eating’ mostly smoothies and soup.i guess this is a bad sign?

Preliminary diagnosis of SqCC at base of tongue August 2, 2019.
Biopsy surgery on August 15
Confirmed sqcc from biopsy Aug 20 - hpv type 16
33 radiation treatments ended October 25, 2019.
3 (large dose) cisplatin treatments.