 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi Barry,
ChristineB’s point about compromised immunity reminded of one important thing — which is, get your flu shot. Of course, it’s early and it isn’t available yet, but all the doctors John saw from the MO, the ENT who diagnosed him and his family doctor advised that he get the flu shot. If you’re still in treatment then, you probably can just get it at Sunnybrook, or you can go to your family doctor.
The PEG will help you gain/not lose anymore weight. The Ensure/Boost you get is counted as liquid, but I always gave John an extra syringe of water after a feeding to flush out the feeding tube and to add extra water. Do remember to do your swallowing exercises several times daily, even dry swallows will do.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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