Cheers Christine, sorry I'm late getting back to reply. Ive been busier than usual lately. I've finished the letter but I'll show my mother so she can edit & add some experiences from her side as my caregiver. I'm planning on sending some out next week. I'd love to get the word out. And yeah, so much could have been spared, & my experience would have been more pleasant if I'd been diagnosed when I had my original checkups.. It's something I can't change for myself, but I can create some hope for the next 'young' person who's unlucky enough to get the disease. Fingers crossed someone reads my letter