Hey Dave, sorry I didn't mean we had the treatment at RBH. Just the pet scan. But alot of people from rural qld do travel there to have treatment. Must be very hard on them. Just having to fly down and back for that one day, being away from all that was familiar and comfortable was bad enough. We couldn't imagine doing it for 6 wks. That's why we decided to move to Newcastle area NSW as all of our family are here. An hour drive away from the hospital also and Steve got to be in the comfort of his own home each day. I would imagine that would make a huge difference.

Sounds like your mum is a legend. I'm really glad you have her for support. Keep coming here and even if your mum wants to as well it will help. There's a section for carer's and it might help your mum to understand some things. These guys here were my rock when Steve went through treatment. Between these guys and my mum I was able to keep going. Makes a huge difference.


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.