@karenj
cheers karen! you've been proven right. so far, i've gone beyond doctor's expectations at each visit, and hopefully i can keep that trend going..
the feeding tube is very uncomfortable isn't it! my doc's decided against the 'peg' because of my original 6 week treatment plan. but i'd had chemo, treatment, etc when i got the extra 3 weeks added on. i needed a peg, but got by (just) on the tube. they couldn't add the peg once i'd started treatment apparently. i haven't even seen what a peg looks like or how it works.sorry to hear he's using the peg still to eat. hopefully he strengthens his movement of his tongue soon and he can slowly work up to soft foods again.i consider myself lucky to eating the foods i am now.

the drives were pretty horrible, but it was my mum as my driver each day. she was their throghout everything. i couldn't have gotten their myself. not a chance.. we were offered partly paid hotel accomodation closer by, but at the time we decided to be home each day/night as the best move. if i have to go through treatment again, i'll seriously consider staying nearby though ! i didn't really meet anyone that i know of who also had tongue cancer. and your little community sounded almost ideal for going through treatment.


thanks for your reply and insight. much appreciated
cheers,
dave