Don,

Try not to dread the feedings if you need them...just take it on like a very important job and think of it as a life saver.

I would like to encourage you as well as anyone reading this thread by saying that my Bill finished treatment on October 1 and by October 10th was eating and drinking easily by mouth and feeling fairly well. He didn't seem to get worse at all after treatments end and was able to eat enough to be off the PEG feedings very quickly - less than two weeks. I actually was able to donate several cases of the Nutren and other PEG supplies to a deserving person at our RO's office. Not everyone has this quick a recovery but Bill did and the fact that you are having no chemo may make your time on the PEG shorter.

No false hopes here...just encouragement. Right now is a good time to take one day at a time...put your head down and take care of yourself.



Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill