OP  "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Well, I finally gave in and started using the tube.  Between my burnt up tongue, the sore throat and the disgusting taste in my mouth, I simply couldn't take in the calories or hydration I needed so this weekend I started tube feedings. I also took the Roxicet for the first time and some serious Robitussen dosing. I've got 20 rads behind me now, 15 left to go, and three chemo infusions. I still have some good energy left and went for a nice walk in the evening cool (after a cat nap!) and that felt great. I hope to keep up the walking and not lose any more wieght.
Last edited by margaret_in_ma; 07-28-2008 09:45 PM. Reason: three infusions left, not two
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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