I have had my PEG for 12 days and just reading about your ordeal overwhelms me.
At this point I just have to put a 50ml syringe of water down it once a day, and that seems bad enough, but now I can't help wondering where that water is actually going!
I know I will get use to things like this soon. I Have to since I start my RT tomorrow. Fortunately before my first RT session I have an appointment at Home Infusion to check my PEG and I don't yet need to know what else they have planned!
Such a wimpy guy
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11