 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 |
Margaret:
You are past the 1/2 way point. Its good that you still are able to take walks and have energy.
Be very careful with weight loss and not getting your hydration and nutrition. Its good that you are using the tube. I ended up being admitted twice to the hospital for dehydration. I had a hard time with the tube feedings and finally had to get a pump to do them overnight. For calories you should be shooting for 3000 per day and minimum 48 oz of water preferably more. If your hydration and nutrition drops you will start feeling pretty bad.
Hang in there it will be over soon.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
