 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ive had my tube for almost 1 year and never thought of those ideas. Even taped to my stomach, I had it pointed down and gotten several leaky days and many changed clothes. Worse yet was the time it was hanging out when I was grocery shopping. I think it scared a little kid who just stared at me like I was a martian.
Thanks for the ideas.
Margaret and Don, dont give up eating and drinking or at least trying to everyday. Its very important to keep swallowing daily so you wont have such a hard time later with recovery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
