Hi Susan from another native New Yorker, transplanted to PA.

Again, just so you are sure:

1. This is your thread...no need to apologize for anything. We know what you are both going through. If it turns out that he does have cancer, try to get Dave on the forum. It ususally works out that either the patient or the caregiver are active, however once in a while it's both.

2. This ENT needs some help in his bedside manner. It is absolutely wrong to tell someone that they have OC without the reults of a biopsy. Also, nodes can be enlarged without being cancerous. Right decision, not to use him.

3. You have access to one of the best CCC's in the world. Leslie (as always) has given you some great information on how to get the ball rolling so you can get Dave into Sloan. BTW, there is an OCF member that lives in CA and he came to Sloan to be treated.

4. Any scans or biopsies taken in one location would more than likely be acceptable to another doctor. They will want to read them themselves, so they must be sent ahead or at least brought with you.

Good luck with your journey and I hope that the ENT is wrong.



Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"