Hi Susan. Welcome but sorry for the circumstances leading you here. I remember when John was diagnosed thinking "this can't be real and I'm to young to be a widow". Do yourself a favor and stay off of the internet "googling" statistics etc. I drove myself crazy wondering if this was a "death" sentence. I remember walking around the first few weeks feeling like I was in a fog and that this couldn't be our lives. I lost my mom to pancreatic cancer and couldn't bear the thought of dealing with another "tough to treat and cure" cancer.

Thank God we are on the other side of treatments and life is good! Our love for each other has strengthened even more than I could have ever imagined and we don't take anything for granted.

I agree with getting your hubby to pack on some weight now. Even with the feeding tube in my husband lost 30 lbs. and wasn't overweight to start with. Keep posting and hang in there. Wanda

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2