 "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Hi Everyone,
The only thing I want to point out is that this is the second woman we have lost recently. Lady 1 and Heather. Regardless of our intentions, we have driven them away when they are the most vulnerable.
I am communicating with Heather privately so we haven't lost her completely, but she was very hurt. I KNOW it was not our intentions to hurt her, but it seems some folks are just way more emotional about their diagnosis than others.
I don't know what to do different, but I hate that people are going away angry. If those 2 talk to 5 people about us and those 5 talk to 5 people....you get the picture.
I love this site and know it saved my sanity.
Just thoughts,
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| 
