Lady1 I'm sorry you feel that way. No one here will tell you they know best. We're sharing information that was shared with us usually by a dr. Or through independant research. People here are basically sharing their experiences and what they have read in terms of information. Some of the members here have had good experiences with Erbitux. Others have had recurrences. As a former medical professional I can say even the drs. don't know. After 11 years in school, training to be a specialist, most drs can give you a well educated guess at best, and base their expected outcomes on experience, but no dr can tell a person for sure what can and will happen when choosing one drug over another. We are all individuals with different biologies, medical histories, environments, and challenges. This is why a perfectly healthy stage one cancer patient may go on to face several recurrences and ultimately pass, when a stage IV will get through it and live another 40 years despite having the same dr., and treatment. People here just want to educate, and share information so that when you are facing a decision you don't step blindly into it.
For me Erbitux wasn't an option. Initially, they had considered me for the clinical trial, however my RO and MO decided against it because I'd had extracapular extension in the one node I had involved. To them sticking with the tried and true (in this case cisplatin) was my best shot at beating this. To me that says - they didn't want to risk my life on an unknown. Clinical trials are important to the advancement of medicine absolutely but in this case with all the mixed reviews I would err on the side of caution and ask for a combo of cisplatin, and Erbitux if Erbitux were offered. (let's hope I never find myself in that position again, to make that choice) hugs.



Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan