Charm, I'm so, so sorry you have to go through this battle yet again. It's just not fair but life unfortunately isn't fair at times. I fear a recurrance with John and how I would handle it. I know so much more now than I did 3 years ago about this horrible disease but that can sometimes be a scarey thing also.

As a caregiver the only thing that kept me sane and calm was to feel like I was actively doing something and in the fight with John not just standing on the sidelines. John has never been on this message board and probably never will. He is a "private" person and would get very upset with me for "sharing" our lives with strangers. You strangers are now part of my extended family and a lifeline for so many.

For most of us females we have to talk about things and share our fears and concerns. Let Bev talk when she needs to and cry when she needs to.

YOU WILL BEAT THIS!!! We are all standing here fighting along with you! All My Best Always! Wanda

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2