Dear Charm, I am sitting here holding in this gut wrenching scream because I don't want to scare our kids. I'm so sorry. I live in daily worry that this will happen to us, only it would only be round 2. I try to think of how I would handle things and I think my biggest fear is what it would do to Kevin. With that being said, maybe Bev just needs to know where you are with this. I fear that Kevin would give up. I wonder if I should let him give up. I think about the fact that it is his body and he has to go through it and will he? I don't know. Just maybe some real frank talk with Bev. Lots of hugs and quality time snuggling. Course, touch is my gift of love and NOT Kevin's, so if the 2 of you are that way too, that may not work! You are right about this site. It is a double edged sword for sure. Blessings Charm. You are loved, Kathy
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14