Thats a very easy question to answer Charm.I joined after hours of trawling the internet for all the information i could find about Oral Cancer.To me knowledge was power and the best information i could find was here.I actually became a member to get good advice and information about products to relieve the problems of radiation burns ,feeding tubes,nutrition,thrush and all the 101 other problems that arose with surgery and radiation treatment,this of course developed into friendships formed and emotional support when times got impossible.

I took complete control of everything with Robs illness,from advocacy to personal care.I spoke for him,asked all the questions,liased with all the medical team,drove him back and forth to every appointment and treatment,i fed him through his tube administered his medication,collected his meds,applied for financial help,paid the bills,kept house,walked the dog,put up with his moods,his abuse,his destructive idiotic behavior,answered the phone dozens of times a day because he wouldn't speak to anyone monitered visits,made excuses and sat by his side for 21 days while he died.

Did i need support ....bet your ass i did,and being seperated from my family this was it.


Why didn't he join? Thats easy too he didnt give a stuff!!! He didnt want to know anything about it EVER He didnt want to ask questions and he didnt want to hear the answers.Worse than that he didnt want me to ask either and hated me for always forcing the issues,and he sure as hell didnt want me telling him anything i found out.

charm it is time you wised up.You,Eric,David are exceptions not the rule


Last edited by Cookey; 04-22-2011 01:14 PM.

Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.