Being one of the ones who have signed onto the site, not a care giver I have to say. I Fight a battle daily between coming in here and not. It's a scary place, and even though I know that everyone has their own outcome it's still hard to read about all these recurrences, and lung mets, and everyone's battles. I greatly admire all that everyone here has gone through and suffered through to survive this disease, but sometimes it's just hard because it can affect you mentally to live in constant fear of recurrence and to lose people you become attached to to a disease that you are suffering from. So I attribute that to why some patients prefer to allow their caregivers to peruse the forum instead of themselves. But I am also a head on type of person, who believes that educating ones self, on what to expect, what to look for, and the whole process, because to me knowledge is power. So I do come here. I also hope that in some way by sharing my journey it will help others who are just at the beginning of theirs.
I do know of one person who has been on the forum and finds it very hard to come back because to her, this battle is terrifying and reading other people's situations scares her. Take care everyone